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PMID: 22622767 Published · ppublish English Journal Article Review

Sharing heterogeneous data: the national database for autism research.

Neuroinformatics ·Vol. 10 ·No. 4 ·2012-10-00 ·Pages 331-9

Hall D, Huerta MF, McAuliffe MJ, Farber GK

Abstract

The National Database for Autism Research (NDAR) is a secure research data repository designed to promote scientific data sharing and collaboration among autism spectrum disorder investigators. The goal of the project is to accelerate scientific discovery through data sharing, data harmonization, and the reporting of research results. Data from over 25,000 research participants are available to qualified investigators through the NDAR portal. Summary information about the available data is available to everyone through that portal.

MeSH Terms
Animals Autistic Disorder/diagnosis,therapy Biomedical Research/methods,statistics & numerical data Cooperative Behavior Databases, Factual/statistics & numerical data Humans Information Dissemination
Authors & Affiliations
4 authors, click to expand affiliations / ORCID
Hall Dan
OMNITEC Solutions, Inc., 6001 Executive Boulevard, Suite 7161, Rockville, MD 20892-9640, USA. [email protected]
Huerta Michael F
McAuliffe Matthew J
Farber Gregory K
References (27)
27 references, click to expand
  1. A view of the digital landscape for neuroscience at NIH.
    Neuroinformatics. 2006;4(2):131-8 PMID: 16845165
  2. Using global unique identifiers to link autism collections.
    J Am Med Inform Assoc. 2010 Nov-Dec;17(6):689-95 PMID: 20962132
  3. Autism brain tissue banking.
    Brain Pathol. 2007 Oct;17(4):412-21 PMID: 17919127
  4. The Alzheimer's disease neuroimaging initiative: progress report and future plans.
    Alzheimers Dement. 2010 May;6(3):202-11.e7 PMID: 20451868
  5. A systematic review of medical treatments for children with autism spectrum disorders.
    Pediatrics. 2011 May;127(5):e1312-21 PMID: 21464191
  6. New directions in behavioral treatment of autism spectrum disorders.
    Curr Opin Neurol. 2010 Apr;23(2):137-43 PMID: 20160648
  7. Reducing interscanner variability of activation in a multicenter fMRI study: controlling for signal-to-fluctuation-noise-ratio (SFNR) differences.
    Neuroimage. 2006 Nov 1;33(2):471-81 PMID: 16952468
  8. Understanding the Brain through Neuroinformatics.
    Front Neurosci. 2008 Aug 01;2(1):19-21 PMID: 18982101
  9. Open neuroscience solutions for the connectome-wide association era.
    Neuron. 2012 Jan 26;73(2):214-8 PMID: 22284177
  10. Psychometric study of the Aberrant Behavior Checklist in Fragile X Syndrome and implications for targeted treatment.
    J Autism Dev Disord. 2012 Jul;42(7):1377-92 PMID: 21972117
  11. The Simons Simplex Collection: a resource for identification of autism genetic risk factors.
    Neuron. 2010 Oct 21;68(2):192-5 PMID: 20955926
  12. Offering to share: how to put heads together in autism neuroimaging.
    J Autism Dev Disord. 2008 Jan;38(1):2-13 PMID: 17347882
  13. Neuroinformatics: opportunities across disciplinary and national borders.
    Neuroimage. 1996 Dec;4(3 Pt 2):S4-6 PMID: 9345515
  14. The NIH MRI study of normal brain development.
    Neuroimage. 2006 Mar;30(1):184-202 PMID: 16376577
  15. Gastrointestinal dysfunction in autism: parental report, clinical evaluation, and associated factors.
    Autism Res. 2012 Apr;5(2):101-8 PMID: 22511450
  16. Changing the landscape of autism research: the autism genetic resource exchange.
    Neuron. 2010 Oct 21;68(2):187-91 PMID: 20955925
  17. Automatic quality assessment in structural brain magnetic resonance imaging.
    Magn Reson Med. 2009 Aug;62(2):365-72 PMID: 19526493
  18. Domain-specific data sharing in neuroscience: what do we have to learn from each other?
    Neuroinformatics. 2008 Summer;6(2):117-21 PMID: 18473189
  19. Structural MRI in autism spectrum disorder.
    Pediatr Res. 2011 May;69(5 Pt 2):63R-8R PMID: 21289538
  20. Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.
    PLoS Genet. 2008 Aug 29;4(8):e1000167 PMID: 18769715
  21. Informatics in radiology: DICOM-RT and its utilization in radiation therapy.
    Radiographics. 2009 May-Jun;29(3):655-67 PMID: 19270073
  22. Understanding and using DICOM, the data interchange standard for biomedical imaging.
    J Am Med Inform Assoc. 1997 May-Jun;4(3):199-212 PMID: 9147339
  23. Provenance in neuroimaging.
    Neuroimage. 2008 Aug 1;42(1):178-95 PMID: 18519166
  24. LONI MiND: metadata in NIfTI for DWI.
    Neuroimage. 2010 Jun;51(2):665-76 PMID: 20206274
  25. Absence of CNTNAP2 leads to epilepsy, neuronal migration abnormalities, and core autism-related deficits.
    Cell. 2011 Sep 30;147(1):235-46 PMID: 21962519
  26. Risk factors for autism: translating genomic discoveries into diagnostics.
    Hum Genet. 2011 Jul;130(1):123-48 PMID: 21701786
  27. Bioinformatics challenges for personalized medicine.
    Bioinformatics. 2011 Jul 1;27(13):1741-8 PMID: 21596790
Article Info
Journal
Neuroinformatics
Abbr.
Neuroinformatics
ISSN
1559-0089
Published
2012-10-00
Pages
331-9
Language
English
Region
United States
NLM ID
101142069
PMCID
PMC4219200
Subset
IM
Grants
Intramural NIH HHS · Z99 MH999999 · United States
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